People who have been touched in some way by a genetic childhood disorder via a friend or family member will often find comfort in hearing about the challenges and triumphs of others who have had similar experiences.
If you would like to share your experience please send us your story. By sharing your own story, you may help other families who are going through a similar experience and help to raise awareness of the effect of genetic conditions in the community.
You can also read stories from other families who courageously shared their stories with us.
Note: Only first names will be published.
Thank you for choosing to share your personal experience with us.